Last Fall, I became aware of a remarkable young man named Sam Berns. Sam was a junior at Foxboro High School, loved Legos, loved playing drums in his high school marching band and wanted to be a scientist when he grew up. Sam also suffered from a rare disease known as Progeria. But to see him, the word "suffer" would never even have entered your mind - facing his fatal disease with a strength and wisdom few adults will ever know.
In the HBO Documentary Life According to Sam his first words to us all were, "I didn't put myself in front of you so you could feel bad for me; I put myself in front of you to let you know you don't have to feel bad for me." I watched the whole documentary with my wife. We both cried and hugged and thanked God all our children were healthy. Afterwards, I couldn't stop thinking about how brave he was and how strong his parents (both doctors trying to find a cure) were through all of this. And, I vowed to do something to help.
Late last week Sam died. He was just 17 years old.
In the HBO Documentary Life According to Sam his first words to us all were, "I didn't put myself in front of you so you could feel bad for me; I put myself in front of you to let you know you don't have to feel bad for me." I watched the whole documentary with my wife. We both cried and hugged and thanked God all our children were healthy. Afterwards, I couldn't stop thinking about how brave he was and how strong his parents (both doctors trying to find a cure) were through all of this. And, I vowed to do something to help.
Late last week Sam died. He was just 17 years old.