Exactly two months from today, I will be running the Ghost Train 100 Mile Trail Race in
memory of Sam Berns. Sam was a
wonderful young man from Foxboro Massachusetts who passed away on January 10th.
Sam suffered from a rare disease called Progeria
– which is a fatal genetic condition characterized by an appearance of
accelerated aging. Sam lived ‘til the ripe old age (at least where Progeria is
concerned) of 17.
Sam’s parents, Leslie Gordon and Scott Berns, founded the Progeria Research Foundation in 1999 and since that time, PRF has been the driving force behind the Progeria gene discovery and the first-ever Progeria drug treatment. They have taken what was an obscure, ignored disease and have developed a globally recognized treatment in just 13 years – an unheard of timeline in the world of medical research!
I will be raising money for PRF and hopefully awareness about Progeria with every mile I run at Ghost Train. But, I need your help! No, I don’t need you to contribute to 100 Miles For Sam (although I wouldn’t be disappointed if you did), what I need instead is your time.
Sam’s parents, Leslie Gordon and Scott Berns, founded the Progeria Research Foundation in 1999 and since that time, PRF has been the driving force behind the Progeria gene discovery and the first-ever Progeria drug treatment. They have taken what was an obscure, ignored disease and have developed a globally recognized treatment in just 13 years – an unheard of timeline in the world of medical research!
I will be raising money for PRF and hopefully awareness about Progeria with every mile I run at Ghost Train. But, I need your help! No, I don’t need you to contribute to 100 Miles For Sam (although I wouldn’t be disappointed if you did), what I need instead is your time.