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Sam’s parents, Leslie Gordon and Scott Berns, founded the Progeria Research Foundation in 1999 and since that time, PRF has been the driving force behind the Progeria gene discovery and the first-ever Progeria drug treatment. They have taken what was an obscure, ignored disease and have developed a globally recognized treatment in just 13 years – an unheard of timeline in the world of medical research!
I will be raising money for PRF and hopefully awareness about Progeria with every mile I run at Ghost Train. But, I need your help! No, I don’t need you to contribute to 100 Miles For Sam (although I wouldn’t be disappointed if you did), what I need instead is your time.